What is The Parkinson Pipeline Project?

• Promotes policies that accelerate the evaluation, approval of safe, effective, and timely new treatments for PD by providing the unique patient perspectives to industry sponsors and investors, clinical scientists, and government regulatory agencies.

• Maintains a comprehensive database of information that may affect ultimate approval and marketing of new therapies including research findings from laboratory studies, animal testing, and human clinical trials, as well as relevant financial and strategic business information about sponsors.

• Tracks the progress of new therapies and diagnostics as they move through sponsors' pipelines, and informs the PD community and the public about hopeful steps toward better treatments and cures.

• Recruits, trains, provides peer supervision, and up-to-date information on the views of grass roots opinion leaders and clinical trial participants for a cadre of well informed PD patient consultants to represent authentic patient interests in the regulatory processes of the FDA in cooperation with the FDA's Office of Special Health Issues.

• Increases medical provider and patient awareness of and participation in clinical trials through outreach, education, and peer counseling.

• Advocates for the rights of clinical trial participants in relation to sponsors as well as researchers and offers participants the confidence of peer support to address grievances with researchers or sponsors.

• Strategic Plan of the Parkinson Pipeline Project

Pipeline Team

Coordinating Staff

	Perry Cohen, Ph.D. Director District of Columbia, USA Diagnosed with PD May, 1996		Tony Jedlinski, B.S. Database Developer Illinois, USA Carepartner
	Ken Cater Research Partner, University of Alabama Medical Center Alabama, USA		Peggy Willocks, M.Ed. Volunteer Coordinator Tennessee, USA Diagnosed with PD 1994
	Wilson DeCamp		Paula Wittekind, M. Ed. Advocacy Coordinator Florida, USA Diagnosed with PD 1992
	Linda Herman, M.L.S. Therapies Coordinator New York State, USA Diagnosed with PD December, 1995		Carolyn Stephenson Web Administration Pennsylvania, USA Diagnosed with PD October, 1994
Community Involvement and Recognition