Community Involvement and Recognition
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Parkinson Pipeline Project, Founder and Director (2002)
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Consultant Cisco Learning Institute (2004), disease management systems and e-learning applications
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Director, Quality Access and Delivery of Parkinson’s Care program for the Parkinson's Disease Foundation (1998)
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Co-Author: Parkinson's Disease Clinical Trials: Square Pegs in Round Holes?
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Read about Perry's other Community work, subjects include: Advocacy, Testimonies, Professional Publications and Presentations click here
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• Licensed Clinical Social Worker registered in New York State
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• Author of Cecily the Cell: A Fable About Parkinson's Disease in 2003
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• Presenter at the Parkinson's and Complementary Medicine, Help Outside the Box Conference in 2007
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• 2005 Louis Fishman Advocacy Award as New York State Coordinator for the Parkinson’s Action Network (PAN)
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• Co-author (with Barbara Blake-Krebs) of When Parkinson’s Strikes Early, a 2001 book about young onset PD
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• New York State Grassroots Co-coordinator, Parkinson’s Action Network (PAN)
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• Active with New Yorkers for the Advancement of Medical Research (NYAMR)
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• Co-editor of the Grassroots Connection web site
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• Co-Author: Parkinson's Disease Clinical Trials: Square Pegs in Round Holes?
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Tony Jedlinski, B.S.
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• President of the Chicago Oracle User Group 1988 - 2006
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• Secretary of the Midwest Oracle User Group since 1999
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• IOUG Board of Directors as Executive V.P. and Director of Web Operations
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• 2005 HTML DB Developer of the Year, by Oracle Magazine
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• 2002 Chris Wooldridge Award for outstanding contribution and dedication to the advancement of the Independent Oracle User
Group (IOUG)
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• Web Administrator for Parkinson Pipeline Project
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• 2004-2005 Organized and lead the Central Twin Tiers Parkinson's Support Group, New York State
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• 2003-2005 New York State Congressional Coordinator, Parkinson's Action Network (PAN)
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• 2006-Present Pennsylvania State Congressional Coordinator, Parkinson's Action Network (PAN)
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• Co-Author: Parkinson's Disease Clinical Trials: Square Pegs in Round Holes?
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• 2009 Murray Charters Award For Outstanding Service to the Parkinson’s Community, a PAN service award
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• 1997 Tennessee Principal of the Year
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• Tennessee State Coordinator for Parkinson's Action Network (PAN)
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• Founder of the Northeast Tennessee Parkinson's Support Group and Young Onset Support Group
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• 2003 Louis Fishman Advocacy Award as Tennessee State Coordinator, Parkinson’s Action Network (PAN)2005 Milly Kondracke
Outstanding Advocacy Award
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• Co-editor of the Grassroots Connection web site
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• Co-editor of the e-zine Virtuality
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