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Parkinson's Insights - Perspectives from PDF

Robin Elliott, Executive Director of PDF has started a Blog.


PD Online Research, powered by Michael J. Fox Foundation - PD Online Research is a collaborative community for technical discussion and problem-solving in Parkinson’s disease science.


 

Pipeline Project Director Perry Cohen, Ph.D., is participating in ANSI workgroup. This task force is defining standards for inter-operable electronic medical records.

Press release


Gene Therapies for PD in clinical trials: a summary of gene therapy treatments tracked by the Parkinson Pipeline Project Database


Repairing the Parkinson's Pipeline, by Robin Elliott, Executive Director of the Parkinson’s Disease Foundation


Response to Robin Elliott, by Perry Cohen, Ph.D., Project Director


Terminated  Experimental Treatments 


On the Toxicity of GDNF:
A challenge to Amgen's  monkey GDNF toxicity study


Book: "Monkeys in the Middle: How One Drug Company Kept a Parkinson's Disease Breakthrough Out of  Reach" by  investigative journalist Nick Nelson, has just been published and is available on Amazon.


The "Access, Compassion, Care, and Ethics for Seriously Ill Patients Act"
or the Access Act (S3046 ) was introduced in the Senate in May. It is a bill to amend the Federal Food, Drug, and Cosmetic Act to create a new conditional approval system for drugs, biological products, and devices that is responsive to the needs of seriously ill patients, and for other purposes. For Details see Library of Congress, Thomas 


Past What's New items have been archived on
this page
.


The Parkinson Pipeline
Project is supported by
the Parkinson's Disease Foundation (PDF),
a 501(c)3 Corporation headquartered in New York City.

Tax deductible donations to the Parkinson Pipeline Project, made through this website to Donate.net, go
to the PDF designated for use by the Parkinson Pipeline Project.


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What is the Pipeline Project?


The Parkinson Pipeline Project is a grassroots group of advocates whose goal is to provide the patient perspective in the treatment development process.  Through education, consultation, and participation with all stakeholders - including industry and the FDA - the Parkinson Pipeline Project hopes to increase clinical trial participation and accelerate approved treatment options.  New PD treatments are followed from pre-clinical development to approval in the Pd Pipeline Database found on our website. More info...


"The missing ingredient in the development of new therapies is the voice of the patient."

Perry D Cohen, Project Director

Declaration of Clinical Research Rights and Responsibilities
for People With Parkinson’s

Clinical research is essential to the development of new therapies and treatments for Parkinson’s disease. Yet, due to a number of factors, including a lack of awareness and understanding of the research process, only one percent of people with Parkinson’s participate. This is far below the number needed, delaying many promising trials.  Read the entire Declaration!

Parkinson's Disease Clinical Trials: Square Pegs in Round Holes?

Poster presented  by the Parkinson Pipeline Project at the
2009 American Society for Experimental Neurotherapeutics (ASENT) Conference

Read the Poster Content

Poster Update, Nov, 2009

"Ethical Issues in Clinical Neuroscience Research: A Patient's Perspective"

Written by Parkinson Pipeline Project members
Published in Neurotherapeutic, Vol. 4, No. 3, 2007.

Read the article

 

To access PD Pipeline database records related to these news items - please click on

  • Acadia and Biovail Not Giving Up on Parkinson’s Drug Read Blog Post,
  • ECT (Electroconvulsive Therapy) for Parkinson's disease, Read Abstract, D. Popeo, CH Kellner, Med Hypotheses, August 4, 2009
  • Dose Groups Read press release (3/3/09)

·         Bending the Rules of Clinical Trials (10/29/09)  Read the full article

·         Bending the Rules for a New Treatment (10/29/09)  Read and/or add comments at New York Times, Health

        

For archived op/eds see Op Eds / Perspectives  

Tell Us What You Think

 

 

 

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The contents of this website and all communications with Parkinson Pipeline Project (PPP) are solely for information purposes and are not intended as medical advice.  While we make every effort to assure that the information is accurate and up to date, an error may >occasionally occur.  All information and materials are provided AS IS without any warranty of any kind.  In no event will the PPP be held liable for any damages arising out of information contained in our website.

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All rights reserved. Revised: 12/10/09