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What is the Pipeline Project?

 

The Parkinson Pipeline Project:
  • Promotes policies that accelerate the evaluation, approval of safe, effective, and timely new treatments for PD by providing the unique patient perspectives to industry sponsors and investors, clinical scientists, and government regulatory agencies.
  • Maintains a comprehensive database of information that may affect ultimate approval and marketing of new therapies including research findings from laboratory studies, animal testing, and human clinical trials, as well as relevant financial and strategic business information about sponsors.
  • Tracks the progress of new therapies and diagnostics as they move through sponsors' pipelines, and informs the PD community and the public about hopeful steps toward better treatments and cures.
  • Recruits, trains, provides peer supervision, and up-to-date information on the views of grass roots opinion leaders and clinical trial participants for a cadre of well informed PD patient consultants to represent authentic patient interests in the regulatory processes of the FDA in cooperation with the FDA's Office of Special Health Issues.
  • Increases medical provider and patient awareness of and participation in clinical trials through outreach, education, and peer counseling.
  • Advocates for the rights of clinical trial participants in relation to sponsors as well as researchers and offers participants the confidence of peer support to address grievances with researchers or sponsors.
About Our Team

The Pipeline Project is comprised of people with Parkinson’s disease who volunteer their time, talent, and expertise; and share their unique  patient perspective to help bring better therapies, more quickly, to people who need them.

Contact Us

Coordinating Staff

  Perry Cohen, Ph.D.
Director
District of Columbia, USA
Diagnosed with PD May, 1996
Tony Jedlinski, B.S.
Database Developer
Illinois, USA
Carepartner
    Ken Cater
Research Partner, University of Alabama Medical Center
Alabama, USA
 
Peggy Willocks, M.Ed.
Volunteer Coordinator

volunteer_services@pdpipeline.org
Tennessee, USA
Diagnosed with PD 1994

  Wilson DeCamp
FDA Patient Consultant for PD
Virginia, USA
Diagnosed with PD January, 2005
 
Paula Wittekind, M. Ed.
Advocacy Coordinator

advocacy@pdpipeline.org
Florida, USA
Diagnosed with PD 1992

  Linda Herman, M.L.S.
Therapies Coordinator

therapy_database@pdpipelne.org
New York State, USA
Diagnosed with PD December, 1995

Carolyn Stephenson
Web Administration

comments_suggestions@pdpipeline.org
Pennsylvania, USA
Diagnosed with PD October, 1994

Pipeline Team

    Duncan Blair, Alabama Patricia Peterson, Minnesota
    Tom Isaacs, England, United Kingdom Virginia Schwinge, New Jersey
    Rees Jenkins, North Carolina Ann Wasson, California
     Arnold M. Kuzmack, Ph.D., Maryland Greg Wasson, California
       
       

Copyright © 2004-2006 Parkinson Pipeline Project.

All rights reserved. Revised: 07/27/08.