We see the ethical context as an important component to building collaborative relationships in an atmosphere of trust and mutual respect which are necessary to gain greater incorporation of patient interests and observations into research and care as well as to recruit PWP to volunteer as research subjects.

Any procedure based on deception starts on shaky ground ethically

We believe that total transparency and full disclosure of information about risks are necessary for informed consent. Patients will take risks if we trust that sponsors will to cover the cost of fixing adverse events and live up to other obligations.

Therapeutic misconception may be a misconception itself about motivations of PWP who want to contribute to science and at the same time receive benefits from treatments: greater promise of the treatment means greater patient expectations. Attempts to lower expectations only dilute the effectiveness of the treatment