Parkinson Pipeline Project

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Parkinson's Insights - Perspectives from PDF

Robin Elliott, Executive Director of PDF has started a Blog.

PD Online Research, powered by Michael J. Fox Foundation - PD Online Research is a collaborative community for technical discussion and problem-solving in Parkinson’s disease science.

Pipeline Project Director Perry Cohen, Ph.D., is participating in ANSI workgroup. This task force is defining standards for inter-operable electronic medical records.

Press release

Gene Therapies for PD in clinical trials: a summary of gene therapy treatments tracked by the Parkinson Pipeline Project Database

Repairing the Parkinson's Pipeline, by Robin Elliott, Executive Director of the Parkinson’s Disease Foundation

Response to Robin Elliott, by Perry Cohen, Ph.D., Project Director

Terminated Experimental Treatments

On the Toxicity of GDNF:
A challenge to Amgen's monkey GDNF toxicity study

Book: "Monkeys in the Middle: How One Drug Company Kept a Parkinson's Disease Breakthrough Out of Reach" by investigative journalist Nick Nelson, has just been published and is available on Amazon.

The "Access, Compassion, Care, and Ethics for Seriously Ill Patients Act"
or the Access Act (S3046 ) was introduced in the Senate in May. It is a bill to amend the Federal Food, Drug, and Cosmetic Act to create a new conditional approval system for drugs, biological products, and devices that is responsive to the needs of seriously ill patients, and for other purposes. For Details see Library of Congress, Thomas

Past What's New items have been archived on
this page.

The Parkinson Pipeline
Project is supported by
the Parkinson's Disease Foundation (PDF),
a 501(c)3 Corporation headquartered in New York City.

Tax deductible donations to the Parkinson Pipeline Project, made through this website to Donate.net, go
to the PDF designated for use by the Parkinson Pipeline Project.

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What is the Pipeline Project?

The Parkinson Pipeline Project is a grassroots group of advocates whose goal is to provide the patient perspective in the treatment development process. Through education, consultation, and participation with all stakeholders - including industry and the FDA - the Parkinson Pipeline Project hopes to increase clinical trial participation and accelerate approved treatment options. New PD treatments are followed from pre-clinical development to approval in the Pd Pipeline Database found on our website. More info...

"The missing ingredient in the development of new therapies is the voice of the patient."

Perry D Cohen, Project Director

Declaration of Clinical Research Rights and Responsibilities
for People With Parkinson’s

Clinical research is essential to the development of new therapies and treatments for Parkinson’s disease. Yet, due to a number of factors, including a lack of awareness and understanding of the research process, only one percent of people with Parkinson’s participate. This is far below the number needed, delaying many promising trials. Read the entire Declaration!

Parkinson's Disease Clinical Trials: Square Pegs in Round Holes?

Poster presented by the Parkinson Pipeline Project at the
2009 American Society for Experimental Neurotherapeutics (ASENT) Conference

Read the Poster Content

Poster Update, Nov, 2009

Report on New PWP Survey on SHAM SURGERY in Parkinson’s Clinical Research

As more Parkinson’s treatments involving surgery, (such as gene therapies and growth factors) move into phase II and III clinical trials, we can expect increased use of sham surgery as a placebo control in clinical trial designs. However, there continues to be controversy about its use among researchers, regulatory agencies, and doctors, who consider placebo controlled clinical trials to be the gold standard, and clinical trial participants, who might become more hesitant about volunteering for trials that involve drilling into their skulls and possibly entering their brain tissue. (June 16, 2010)

Read the survey results.

Parkinson Pipeline Project Database of Emerging Therapies - To access PD Pipeline database records related to these news items - please click on

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In The Parkinson's Disease News

Videocast of NIH Sham Surgery Conference - Day 1 (6/30/10) View Video
Parkinson's Disease Foundation (PDF) Blog on the NIH sham surgery comference (8/16/10) View Blog Entry
Biotechnology: Crossing the Barrier ( GDNF Research). Article from Nature (8/14/10) View Item

For archived op/eds see Op Eds / Perspectives

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