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3. Did you receive a placebo
for the first 6 months? no
4. If so, did you
receive GDNF after the 6 month trial period ended?
NA
5. If first given the placebo,
how many GDNF treatments did you receive before the halt?
NA
6. Since starting the
GDNF trial:
Did you notice any
physical, cognitive or emotional changes in your
Parkinson's Disease?
Please describe the changes and when you first
noticed them.
taste and smell improved within
weeks, improved communication skills, better
movement and less tremor.
7. Since the trial halt in
September 2004:
Did you notice any
physical, cognitive or emotional changes in your
Parkinson's Disease?
Please describe the changes and when you first
noticed them.
walking has become a lot harder
in the last six months; inability for body to cope
with extreme temperature.
8. Are your pump
and catheter(s) still implanted?
no
9. Have you had a DBS
? yes
How well do you think the
DBS worked?
controls the 'off' period
quite well, have been able to cut down on tablets, but dyskinesias
still a problem.
10. Additional comments:
The trial was a window of hope in a
room of despair. Parkinson's is as much a condition of
the mind as it is physical. Since coming off the trial,
it is harder to cope with the extreme changes in the
condition.
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